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OT: Update

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    OT: Update

    Today, at the advising of a "big city" doctor, I prepped for and attended a critical appointment with a new nephrologist for my daughter. We had not received good answers elsewhere. A problem-solver, he listened well. He reviewed the various charts of data collection I brought him. Finally we have some proposed answers.


    The not-so-good news:
    -She has Chronic Kidney Disease, Stage 3a. (Stages 1-5, with 5 requiring dialysis/transplant.)
    -According to the nephrologist, CKD was likely caused by a high-dose medication started by a treating psychiatrist four years ago.
    -Her kidney damage is irreversible, he believes. (I'm still hoping her kidney function numbers will climb back up, but we'll see.)

    The better news:
    -Over the past 6 weeks, we have successfully tapered the allegedly offending medication! No side effects, other than a return to her multi-syllabic, classical-education induced vocabulary. Cognitive dulling had also occurred while on the medication. New poems are now emerging in bundles. She is using words I did not know that she knew.
    -This summer's low-sodium renal diet and a daily abundance of fruits, vegetables, and smoothies lowered her blood pressure naturally. No more hypertension! No bp meds needed. Just keep eating apples and enjoy less Chinese take-out.
    -The doctor believes that we can keep her at Stage 3a for many years. This is such a relief to me, because her numbers had dropped quickly over the past few months. It had seemed she was on a fast track to renal failure. At this point, even a steady level of Stage 3a would be an enormous relief.


    This top nephrologist now comes to our small town once a week. He agreed to follow us and will check numbers closely for us. We return in three months.


    Thanks to all who prayed or thought about Michelle. She has become even more precious to me over these past months.

    Cheryl

    #2
    Re: OT: Update

    I am very glad to hear the good news, and will pray that your daughter continues to do better and that perhaps some of the kidney disease can be reversed.
    JeJe Greer
    Mom to:
    Stella (6M in 2018-2019)
    Clara (SC3 in 2018-2019)

    Comment


      #3
      Re: OT: Update

      A mixed bag, but I know you're a glass half-full kind of gal. Amen
      Married to DH for 13 years. Living the rural life in the Colorado mountains

      DS10- Simply Classical 4 / Grade 3 Classic Core,
      DD8- Grade 2 Classic Core,
      DD 6- Classic Core Kindergarten

      Comment


        #4
        Re: OT: Update

        Cheryl, this is wonderful, even with the chronic; it's hopeful. Continuing to pray for her!
        Michelle in Central Tx
        DS 12 (4A modified), Ds 9 (4M), DS 5 (K)

        Comment


          #5
          Re: OT: Update

          Awesome news! What a relief that Michelle's kidneys are staying the course! She is young and strong. I feel like, with your guidance, she will continue to thrive and stay level. Who knows? There are probably lots of us walking around with our organs in "stages" we don't know about. At least Michelle is in a position to be pro-active and protect hers.

          I know you are vastly relieved, and I am glad about that. (Though I'm sorry about the reduced Chinese take-out ...)

          Tanya

          Comment


            #6
            Re: OT: Update

            Originally posted by tanya View Post
            Awesome news! What a relief that Michelle's kidneys are staying the course! She is young and strong. I feel like, with your guidance, she will continue to thrive and stay level. Who knows? There are probably lots of us walking around with our organs in "stages" we don't know about. At least Michelle is in a position to be pro-active and protect hers.

            I know you are vastly relieved, and I am glad about that. (Though I'm sorry about the reduced Chinese take-out ...)

            Tanya
            What Tanya said + a happy dance + a big hug + a reminder: prayer. works. (a little Benedictine pun )
            Boy Wonder: 10, MP2/SC4 (Special Needs)
            Joy Bubble: 8, MP2 (Special Needs)
            Snuggly Cowboy: 6, MPK
            Sweet Lightness: 2, Reverse-Engineering Specialist

            “Have no fear of moving into the unknown. Simply step out fearlessly knowing that I am with you, therefore no harm can befall you; all is very, very well. Do this in complete faith and confidence.”
            ~Pope St John Paul II

            Comment


              #7
              Re: OT: Update

              Thanks for the update!! We will continue to keep you all in prayers!

              A random: Chinese food? But an insta-pot - I just did. It is still in box (just got yesterday!), but the pictures of food (sometimes cooked in 10 min)! Are amazing!! I see lots of Chinese! I just saw a beef and broccoli! :-)
              Christine

              (2018-2019)
              DD1 8/23/09 - SC4
              DS2 9/1/11 - SC2
              DD3 2/9/13 - MPK

              Previous Years
              DD 1 (MPK, SC2 (with AAR), SC3)
              DS2 (SCB, SCC, MPK)
              DD3 (SCA, SCB, Jr. K workbooks, soaking up from the others!)

              Comment


                #8
                Re: OT: Update

                So glad to hear your dietary intervention had such immediate success. I know the rest is hard to hear. I'll keep praying for her.
                Catherine

                2018-19
                DS15, 9th
                DS13, 6th
                DS11, 5th
                DD11, 5th
                DS6, K
                DD3
                DS 10 mos

                Homeschooling 3 with MP
                2 using First Form series in school

                Comment


                  #9
                  Re: OT: Update

                  Thanks to all for the support.

                  I think the numbers in three months will give us an even better picture. Until then, we'll continue as we are doing. An apple a day....


                  Michelle is just thankful she doesn't need to hear the word "kidney" for a while!

                  Comment


                    #10
                    Re: OT: Update

                    Glad to that there have been some encouraging developments. Continuing to pray for you all & for Michelle's healing/strengthening.

                    heather

                    Comment


                      #11
                      Re: OT: Update

                      Originally posted by cherylswope View Post
                      Michelle is just thankful she doesn't need to hear the word "kidney" for a while!
                      Speaking of kidneys, my mom and I were talking about those this weekend, and I wanted to share two things with you I learned. My aunt has kidney problems; she also has diabetes and is older. Mom said my aunt's doctor told her to limit liquids, but her kidneys are at like 25%. Might be something to ask your doctor or research.

                      Second, be aware that over-the-counter acid-blockers (for stomach) like Nexium, Prilosec, etc. can cause kidney damage. Your daughter probably has not taken these, but something to put on your raider. I'm trying to get my mom to stop taking them, hence, the kidney discussion!
                      Michelle in Central Tx
                      DS 12 (4A modified), Ds 9 (4M), DS 5 (K)

                      Comment


                        #12
                        Re: OT: Update

                        Originally posted by HeatherB View Post
                        Glad to that there have been some encouraging developments. Continuing to pray for you all & for Michelle's healing/strengthening.

                        heather

                        Thank you, Heather!

                        Comment


                          #13
                          Re: OT: Update

                          Originally posted by mymommy1 View Post
                          Speaking of kidneys, my mom and I were talking about those this weekend, and I wanted to share two things with you I learned. My aunt has kidney problems; she also has diabetes and is older. Mom said my aunt's doctor told her to limit liquids, but her kidneys are at like 25%. Might be something to ask your doctor or research.

                          Second, be aware that over-the-counter acid-blockers (for stomach) like Nexium, Prilosec, etc. can cause kidney damage. Your daughter probably has not taken these, but something to put on your raider. I'm trying to get my mom to stop taking them, hence, the kidney discussion!

                          Based on Michelle's stage, she is supposed to drink good, clear water in sufficient amounts to avoid dehydration at all costs, but I have recently read about some at other stages, or for other reasons, who need to limit fluid intake. I suppose each person (or stage) is different.

                          And yes, not only PPIs, but also NSAIDs. Much to avoid, but most on the "avoid" list would be good for all of us to avoid! Also much to embrace. I'm especially enjoying the abundance of fresh fruits and vegetables. This has become a nice excuse to enjoy organic produce. Even my husband is cooking with our garden kale and bell peppers!

                          Thank you for the information and input. All is appreciated.

                          Cheryl

                          Comment


                            #14
                            Re: OT: Update

                            Quick update:


                            After reading & implementing books such as Smoothies for Kidney Health, avoiding salt, NSAIDS, and PPIs, and hydrating more intentionally, Michelle's kidney disease has improved from Stage 3 to Stage 2!

                            The nephrologist had to adjust his diagnosis, because he said that permanent damage does not reverse.


                            Her other kidney numbers remain stable, but the improved overall function brought happy tears at this November appointment.


                            Thanks so much for prayer. She is so precious to us as a young woman who writes poignant poetry, yet who still loves to be tucked in every night.

                            Cheryl

                            Comment


                              #15
                              Re: OT: Update

                              This is wonderful news! I am so happy for your family! What a wonderful early Christmas gift!
                              JeJe Greer
                              Mom to:
                              Stella (6M in 2018-2019)
                              Clara (SC3 in 2018-2019)

                              Comment

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