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This website contains general information about medical and educational conditions and treatments. The information is not advice, and should not be treated as such.

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How do you all regroup and start again... and again...

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  • Anita
    replied
    And your post about this on your blog is gorgeous.

    Leave a comment:


  • Anita
    replied
    Will echo what everyone else has said (just now saw this, we are busy as well).

    Only will add:
    Every crisis, every joy, every good day, every scary day is provided for by God -- before, during and after. He's got it. If, after you have been diligent and kept to your commitments prudently, you don't get anything "done" except cuddles, that's what God knew was the most important thing. So do that

    I myself find that there is never enough time for me to process everything. I have a bad habit of not allowing myself time to "feel" what we have been through. I just keep going and working and taking care of everyone... And then wonder why I crash and burn (aka losing my temper, crying unexpectedly, waking up in the morning already exhausted).

    Cheryl is right -- TAKE CARE OF YOURSELF. EVEN IF YOU DON'T FEEL LIKE IT. Keeping a thankfulness journal -- keeping a journal period! -- helps. Coming here for support, having a cup of tea, taking a nap, cuddling those children, just sitting and being, silent PRAYER, and (for me) HOT WATER are so, so, so, SO HELPFUL.

    Can't make this longer (so sorry) my kids need me! Know you are not alone.

    Leave a comment:


  • EllieCove
    replied
    Kim, I wanted to offer my prayers. I'm so sorry you all had such a crisis!

    In our family there's me, permanently, significantly, physically disabled from a brain tumor. And there's my 13yo son who has a serious medical condition as well as both he and his sister having compromised immune systems.

    We homeschool year round because there is no way we would even begin to make our state mandated hours if we didn't. My Kids are ill for 2-3 weeks every 8-12 weeks. And then of course there are the, seemingly endless, rounds of medical appointments. So we live in a constant round of stopping and restarting, stopping and restarting. In many ways, it is significantly more difficult now than it was when they were small. Now, they're both learning at the high school level and it's a challenge to drop subjects and then regroup -- those first couple days back there's a lot of "wait, where were we at with this?!". There is a rhythm to this life and we do the best we can, working hard and praying for acceptance and peace and patience. And I wouldn't trade homeschooling for anything! Homeschooling make sit possible for my kids to recieve an excellent education, despite the significant medical limitations.

    Leave a comment:


  • MaggieAnnie
    replied
    Cheryl had good words, I am not sure if I have anything to offer but compassion but please know you are not alone...there are many here who understand such struggles.

    As a family we have learned to live day to day, lesson plans are all well and good for my family but sometimes it might be weeks where I do not touch them...we move forward as we are able and start again. (I agree love those blank dates )

    Each time I wake up I just say ok its day one , lets go! That is all I can do.

    So no great advice but prayers for your family.

    Leave a comment:


  • cherylswope
    replied
    Hi, Kim.

    Perhaps no one responded because no easy answers exist, but your post received many views. I am certain your family has been lifted in prayer.


    It is terrifying and sobering when we come so near to losing our children. In those moments the child's academic goals, usually so relentlessly prominent in our minds, disappear into darkness. We want only for our child to live.


    Get some good rest. Snuggle your little boy, with or without books, and take care of yourself. Eat well, even if you do not feel like eating well. When you feel recovered, carry on. Sometimes the return to routine assures our children (and ourselves) that all is well.

    In our home, the simple act of writing the next day's schedule seems to calm and reassure my children. Often I reduce the obligations, but we keep a schedule. Your SC lesson plans allow for this flexibility because, unlike planners from office supply stores, there are no dates!

    If you can accomplish only 1-2 portions in a day, or only 1-2 full days in a week amidst phone calls and necessary arrangements, just keep teaching, as you can. As you said, you know how to resume the routine. With special needs, sometimes the routine must bend around doctors, therapists, and medical emergencies. We try to keep this to a minimum, if only because the child does not need to overhear so much worry.



    Just two nights ago, we faced a trauma here. Tears flowed more easily than any helpful thoughts. When I have no wisdom for my children on such nights, I can do little more than send all of us to bed with these words of hope and promise: "God's mercies are new every morning." And they are.

    Cheryl

    Leave a comment:


  • How do you all regroup and start again... and again...

    We had a significant airway emergency with our son's tracheotomy on Monday evening. It has made me realize despite homeschooling for a long time, I have never had to deal with as many interruptions to that process as I face with my little guy now. How do you all do it?!?!?!

    Please offer tips for getting back into the normal routine again after special needs/medical life dominates. I don't struggle as much in the area of the daily schedule for my son. I am able to jump back into that pretty quickly. But the momma part that has to process what has happened and then has an increased amount of advocating to do. Post emergency phone calls to specialists and our guy's team took over three hours yesterday and also included an impromptu meeting with his nursing agency! That was my time to cuddle and read books and do our preschool together. I would love to hear how others find ways to keep it all in balance.
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